Game Rules

I got a ton of these, and if they don’t make you laugh, you need to go have your funny bone x-rayed.

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Hello dear reader.

I had three good days in a row! That’s something to celebrate for sure!

Today is the fourth day in a row I’ve been in too much pain to function. I’m trying very hard to focus on the three good days I had and remind myself that I will have more. I just have to get through this stretch. It’s amazing to me how difficult that is to see when my entire body hurts like this. Right now hope feels like a fool’s game. But you know what? I’m going to play it anyway.

Here are the rules. First, and most important, remember that the pain is not who I am. It’s something I have to deal with. Second, my memory may be all kinds of screwed up, but I have wonderful memories that are still there. Third, I have a lot more amazing memories to make.

There’s the rules, now let’s get to the game. I’m really excited that I’m going to see my daughter in 18 days, 18 hours, and 40 minu.tes. I have a countdown timer on my phone. That translates into I’m leaving at 9 AM on the 28th. It’s a 12 hour drive, but I’m going to split it into two days. The plan is to drive 7-8 hours on Thursday (depending on how I do) and get a room for the night wherever that ends up. I’m going to sleep in as late as possible Friday morning and be back on the road around noon. I’ll only have 4-5 hours of driving, and will get to her house right after she gets off work. I’ll be there all day Saturday, Sunday, and Monday. I’ll leave Tuesday morning and do the same thing in reverse. I’ll get home on Wednesday (the fourth of July) in the early afternoon and will go watch the fireworks with Tim that evening. Thursday and Friday of that week are scheduled for recuperation. So that’s the plan, and definitely an amazing memory.

There’s rule number three. Yes, I do know I’m going backwards, but nothing said I had to do them in order ;-). Let’s think about a wonderful memory I already have. There are tons to choose from! Here’s one I think you’ll like. When my youngest daughter had been going to kindergarten for about two weeks she came home very upset one day. I, of course, asked her what was wrong. She said, “Mommy, we have to start eating liver!” I hate liver, don’t eat it and won’t cook it. So I told her no, it was okay, and we didn’t have to eat liver. She cried even harder when I told her this, and said she didn’t want the guards to get us. Of course, I asked, “What guards?” She looked at me like I was the stupidest person she’d ever seen and said, “The invisible ones!” I had to get to the bottom of this and asked her who had told her this. She said it was her teacher. Completely confused I told her to tell me exactly what her teacher had said. “She makes us say it every day….I pledge to the flag of America and to the Public it stands…one nation, under guard, invisible, with liver and just this for all.” I pulled her into a big hug, laughing so hard I couldn’t talk, then explained her mistake to her. I got a ton of these, and if they don’t make you laugh, you need to go have your funny bone x-rayed.

What was the other one? Oh yeah, the pain is not who I am. Telling you a good memory and something I’m looking forward to made the pain back off a little bit. That proves it isn’t who I am, doesn’t it?

I know I left you hanging with Home and Family part 1 and I will return to that next time. This just wasn’t the time for it.

What do you do when the pain tries to take over? Do you have memories you draw on? Are you looking forward to something? Please let me know in the comment box below. We can never have too many tools to use.

Thanks for helping me through this one.

Until next time…

21 thoughts on “Game Rules

  1. Great post. I often don’t like to admits my memory isn’t well, I feel so inadequate a lot of the times that it’s tough to think of all the things that are not quite right anymore. I deal with my pain as it comes, try not to stress, I don’t push myself to do everything all at once or in one day, I remember to take my pain medication and try to always remember to accept the new me. 💛🙏🏽 Love the memory of your daughter, you didn’t have to eat liver after all! 🙄😆

    Liked by 1 person

    1. I have a lot of memory issues as well. Sometimes that’s worse than the pain. I had to sign some paperwork the other day and couldn’t remember what year it was. I also couldn’t remember the phone number for the church (I was picking up donations) which I’ve been dialing for 15 years. When I got home I realized I had put the wrong month as well. It really scared me!

      Liked by 1 person

      1. Ugh! I know! It happens to me all the tine, it is so scary. I often think if I’m like this at 33, how am I going to be when I get older?! My children will comment, remember when we did this and that, and I can’t, I don’t remember. I’ve never really asked my neurologist if there is a link between Chiari and memory loss. But wow, since my diagnosis back in 2013, it’s be bad. I often have to write every little thing down, everything.

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        1. I know! My kids do that too. A girl found me on FB who was apparently one of my best childhood friends. I keep trying but I have no memory of her. I know she’s telling the truth, but I don’t remember any of it no matter how many stories of things we did she tells me.
          Did you have surgery? I wasn’t diagnosed until I was 40 and by that point it was so bad they had to remove 12 cm of skull, C-1 and C-2 from my neck, and burn off the back of my brain. That was 12 years ago and while I’ve never had a good memory, it got much worse after the surgery.
          I depend on my phone for everything. I have reminders set for everything, or I’ll forget to even look at it.

          Liked by 1 person

          1. Yes https://wp.me/p9EbYM-4 you can read about it on that post. I have Chiari 1 Malformation and Syringomyelia. I had decompression for Chiari in May 2013 and Laminectomy for the Syringomyelia in November 2017. It’s been a rollercoaster of an ordeal since 2013. They did remove part of my skull however because I’ve continued to be feeling bad, I sought out a 2nd opinion and that surgeon said, they made a ‘good attempt’ at my decompression. Apparently, in his opinion, you don’t remove skull now a days, however since my surgeon did, he didn’t remove enough. 🤦🏽‍♀️ I mean! What do you say to that?! He turned at told his assistant, it’s too late to sue, due to the statutes of limitations. However, what if you sue?! What do I gain, part of my skull is gone and part of my brain is gone?! I think that’s enough. Yes! My husband laughs, but I do have an alarm for just about everything, my children’s dismissal, doctors appt., call this doctor, set up appt. with so and so. I mean I have to, otherwise I don’t remember to do it. It’s a little bit embarrassing but I’m so glad you can relate. This is my reality. This is what I have to love with. I can’t go to school functions on days that I don’t feel well, I can’t go on school field trips because of the long bus rides, etc. This thing has completely changed my life. On good days, I accept it, on my not so good days, I feel like breaking down. 🙏🏽

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          2. There’s not much more they can do for me at this point. I’ve had five surgeries total. I see a pain management doctor monthly. I’ve developed several other conditions and nobody’s really sure what connects to what. I have scoliosis, a herniated disc, fibromyalgia, chronic fatigue, and COPD. That’s just the physical stuff. I have a lot of mental illness as well… chronic depression, PTSD, and GAD (Generalized Anxiety Disorder).
            When I was younger I dealt with a lot of pain, but things have gotten so much worse over time. I’m thankful my children are all grown now. I don’t know how you do it. You definitely get a lot of respect from me!

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  2. I am so glad you get to see your granddaughter. If that isn’t a great memory in the making, I don’t know what is.

    How do I get through pain? Slowly. One momeny, one step at a time. Breathing slowly and thoughtfully can help. Asking for help so I don’t make things worse…. That’s the really hard one.

    Liked by 2 people

    1. Thank you. I’m going to see my daughter in a few weeks, the trip to see the granddaughters is later in July.
      I agree completely. It is very difficult to ask for help. It’s still really hard for me to admit that I need help, but I’m working on that. My husband makes it easier. He encourages me to let him do things for me. It still makes me feel guilty, but it’s getting better.

      Liked by 1 person

      1. ((hugs)) It’s amazing the difference a supportive partner can make. I’m sorry I misread daughter and granddaughters, but either way, it’s something nice to look forwards to!

        Liked by 1 person

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