Creative Solutions

Each of our experiences can help someone else.

Hello dear reader.

With as many diagnosis as I have, it’s often difficult to know which illness is causing what problem. For example, let’s look at the back pain I’m dealing with right now. It’s located in the top half of my back. I’ve had to be on oxygen for several days. When I take it off I drop into the high 60’s or low 70’s. That’s a COPD flare up or even pneumonia, either of which could be causing my back pain. It could also be the scoliosis causing it, or all the driving I did last week.

Scoliosis, COPD, fibromyalgia, and Chiari can all increase my headache. COPD and fibromyalgia can cause my extreme exhaustion, or it could simply be a result of pushing myself so hard last week.

Why does it even matter? If the back pain is coming from my lungs, soaking in a hot, Epson salt bath can make it worse. Humidity makes it harder to breathe. If something else is causing it, a hot bath can help a lot. So how do I know what to do?

I’ve learned to be creative. In this case, I’m sitting on a heating pad. If that helps I’ll know it’s not my lungs and will go take a bath. If it doesn’t I’ll know it’s from my lungs.

I’m certain many of you face similar dilemmas. What are some of the ways you’ve come up with to handle them?

I think it’s wonderful when we can learn from each other. Each of our experiences can help someone else. Isn’t that what it’s all about? I’m looking forward to some of your ideas.

Until next time…

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Lessons

Some lessons are more important than others, some are easier to learn than others, and it’s a life-long endeavor.

Hello dear reader.

I hope all the mothers out there had a wonderful mother’s day. I had a very emotional day. I spent quite a bit of time talking with two of my children, my mother, and my mother-in-law, which was great. I also spent a lot of time feeling how much I miss the two of my children who aren’t speaking to me. I always miss them, but it hits me harder on holidays and birthdays. I’ve tried to turn it into a learning experience, though probably not the way you’d think. I’m not going to go into the whole mess about why the situation is the way it is except to say that most of it was beyond my control. The biggest thing I’ve learned from it is that I can’t hold myself responsible for other peoples’ behavior, only how I react to their choices. I can’t force my will on anyone else. I can choose to stop putting myself in situations that open me up for further pain. That was a difficult thing for me to understand. Lesson learned.

Here’s another situation that’s not nearly as important, but is still a learning experience. I read over my last post and realized how scattered it was, definitely not my best writing. I think it turned out that way because I was trying to fit in too many things. I was more concerned with it not being overly long than I was with clarity. What did I learn from that? I learned that clarity needs to be priority. I should have either let the post run longer or split it up. Lesson learned.

Some learning experiences are a work in progress. I’ve learned them in my head but struggle with learning them in my life. For example, I blew my back out yesterday. I’m in a huge amount of pain today and can’t walk at all without my cane. I guess I need to quit doing crazy things like vacuuming the floor. The lesson I’m struggling so much with is that I have no reason to feel guilty. I know for a fact I didn’t do anything wrong, yet I still feel guilty for not being able to cook dinner for my husband. I feel guilty about having to cancel a doctor appointment I had scheduled for tomorrow. It’s five hours round trip and even if I got someone else to drive, the ride would be absolute torture. I have no reason to feel guilty, yet I still do. Lesson in progress.

Some lessons are more important than others, some are easier to learn than others, and it’s a life-long endeavor. What are some of the hardest/most important lessons you’ve learned?

Until next time…

Acceptance or Courage?

This choice is being made by Medicade, not by me or by my doctor.

Hello dear reader.

I’m sure most of you have heard the Serenity Prayer. It’s said at AA/NA/Al-Anon meetings, but I think it has value for everyone. It goes like this:

God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.

I’m trying hard to find that wisdom right now.

As I’ve told you previously, I’ve found a combination of meds that has made me feel better than I have in years. I also told you that they’re taking it away from me. I have a little over a week and a half left before they’re sending me back to hell.

I’ve had the rug pulled out from under me more times than I can count, but this is different. Before I started taking this, I thought the unending pain, exhaustion, and misery was just the way it was and that was that. I had accepted what I couldn’t change.

In the last few weeks I’ve discovered that the parts of me I thought were gone still exist. I’ve felt like me for the first time in… I can’t remember how long. Now that I know it still exists, I don’t want to give it up.

I’ve been doing my best since I found out they were talking it away from me to just enjoy this time I have. I don’t want to waste it being upset because it’s temporary. But I’ve really struggled with that today for some reason.

I’m frustrated. I’m angry. I’m sad. And, to be perfectly honest, I’m scared.

This choice is being made by Medicade, not by me or by my doctor. So is this something I need to find the courage to change or that I need to just accept? Is courage enough to change it?

I’m sorry this post isn’t uplifting or inspiring. But this post is where I am today. I warned you at the beginning that this journey wouldn’t always be pretty. Thanks for being here even when it’s not.

Until next time…

Pure at heart!

My next response was that I needed to share this with others.

Hello dear reader.

I read this post and it blew me away! This was my first response:
What a wonderful reminder! I have tried to live that way all my life and raised my children to be respectful, polite, and compassionate.
We can only see bits and pieces of people’s lives. We don’t know how much pain a smile is hiding. I believe we should look for opportunities to lift others up. This word or a simple act of kindness can make a bigger difference in someone’s life than you realize.
This post was wonderfully written and meaningful

My next response was that I needed to share this with others. So I asked the author at Godly Chick Diaries if I could repost it on my blog. She graciously gave me her permission. So here it is. I hope it speaks to you like it did to me.

https://wp.me/p7sSpk-1VL

Until next time…