Acceptance or Courage?

This choice is being made by Medicade, not by me or by my doctor.

Hello dear reader.

I’m sure most of you have heard the Serenity Prayer. It’s said at AA/NA/Al-Anon meetings, but I think it has value for everyone. It goes like this:

God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.

I’m trying hard to find that wisdom right now.

As I’ve told you previously, I’ve found a combination of meds that has made me feel better than I have in years. I also told you that they’re taking it away from me. I have a little over a week and a half left before they’re sending me back to hell.

I’ve had the rug pulled out from under me more times than I can count, but this is different. Before I started taking this, I thought the unending pain, exhaustion, and misery was just the way it was and that was that. I had accepted what I couldn’t change.

In the last few weeks I’ve discovered that the parts of me I thought were gone still exist. I’ve felt like me for the first time in… I can’t remember how long. Now that I know it still exists, I don’t want to give it up.

I’ve been doing my best since I found out they were talking it away from me to just enjoy this time I have. I don’t want to waste it being upset because it’s temporary. But I’ve really struggled with that today for some reason.

I’m frustrated. I’m angry. I’m sad. And, to be perfectly honest, I’m scared.

This choice is being made by Medicade, not by me or by my doctor. So is this something I need to find the courage to change or that I need to just accept? Is courage enough to change it?

I’m sorry this post isn’t uplifting or inspiring. But this post is where I am today. I warned you at the beginning that this journey wouldn’t always be pretty. Thanks for being here even when it’s not.

Until next time…

Advertisements

Scared

Hello dear reader.

I promised you complete honesty at the beginning of this journey.  You know I try very hard to be positive, to be thankful for everything in my life.  You also know that my health is not great.  Today is not a good day.  As a matter of fact, the last several weeks have been quite rough.  I haven’t written in a few days because I was hoping I would feel better, both physically and mentally, before I wrote again.  Sometimes it’s hard to see the difference between complete honesty and a pity-party.  This is not the latter.  This is me being honest about myself.   That said, I’m going to tell you what happened today that scared the crap out of me.

Let me begin at the beginning…I’ve had problems with kidney stones for a long time.  My kidneys, as well as the tubes between the kidneys and the bladder, are full of them.  This, along with my lousy immune system makes me more succeptible to kidney infections.  I’ve had the flank pain for almost a month this time, but didn’t go to the doctor until my temperature shot up to 102 a little over a week ago.  When I got to the doctor the fever wasn’t there but she gave me antibiotics anyway.  Of course I got the whole “if you aren’t better in a few days or if it gets worse…” deal.  I took my antibiotics religiously and didn’t miss a dose.  After a week of them, the pain isn’t just in my right flank anymore.  It now goes around and inside my hip bone.  It feels kind of like a vice on my right midside.  My temperature has stayed around 99-100.  So I called the doctor’s office and made an appointment for today.  Okay, there’s the background.

When it got close to time for me to leave I gathered the things that I needed to bring.  I also realized that I had forgotten to take the chicken for tonight out of the freezer, so I did that too.  In order to be sure it would be thawed out in time, I put it into the sink with water.  I left my house with time to spare so I wouldn’t have to stress about being late.  So here I was, driving up the pass with no worries listening to the radio. Just as I got to the summit of the pass I suddenly realized I hadn’t turned off the water in the sink.  I racked my brains.  Surely I didn’t leave it on!  But I couldn’t remember turning it off no matter how hard I tried.  I tried to think who I could call to go turn it off for me.  There are several people I know would do it, but who would Duke let into the house?  I didn’t trust him with anyone, especially without Tim or I there.  So I turned around and headed back to the house to turn off the water.  Traffic was totally stressing me out!  Every minute that passed I could envision the water getting deeper and deeper in the kitchen.  Would it spread onto the hardwood floors?  What kind of damage would that do?  Finally, after what seemed like forever, I got to the house.  I stopped on the side of the road and jumped out of the truck without even turning it off, much less locking it.  I ran as fast as I could to the front door and fought with the lock, got in and ran to the kitchen to see how bad it was….

There was no water running.  Everything was fine.   Of course by then there was no way for me to make it to the doctor in time.  I called and told them I would be a few minutes late, but they said if I was late I wouldn’t be seen.  So I rescheduled for tomorrow.  No big deal, right?  Happy ending, right?  No.  Not even close.

My short-term memory hasn’t worked very well since they removed the back part of my brain (see my post on Chiari Malformation).  I’ve learned to work around it some.  I write things down and set reminders on my phone for appointments and phone calls that need to be made, things like that.  But this split from reality, whatever you want to call it, how do I work around that?  It’s one more thing that scares me to death.  I’m terrified that my conscious brain’s functioning is getting worse.  I’m too young to be senile, aren’t I?

I was 100% certain I left that water running.  How could I be that certain and be wrong?  I don’t know.  Maybe I’m over-reacting, maybe I have reason to be afraid.  Either way, that’s where I am.  That’s how I feel.  Tomorrow will be better.  I’m 100% certain.

Until next time…

Contrasts

Hello dear reader.

Two weeks from today I will be married to the love of my life.  It feels surreal.  I told Tim this morning that I am so happy and my life is so amazing that it scares me.  I keep expecting to wake up.  We have a great house in the most beautiful place on earth.  All of my children and grandchildren are healthy and happy.  We have the best friends anyone could ever have.  Tim has a job that he loves and we can live on.  Every morning we wake up to birds singing outside our window.  We start our days drinking coffee and laughing at the dogs.  I’m making progress in getting my pain under control.  I get to be a voice for children who need a voice.  I’m marrying a man who is loving, compassionate, loyal, and keeps me laughing.  I get to be married to someone who was, is, and always will be my friend.  This is my life?  Really?  How did this happen?  How did I get here from where I’ve been?

I started out as a physically and sexually abused child.  I went from there to being in physically abusive relationships.  I have to say though, I’d do it all again to have my kids.  They were the only good thing in my life.  All I wanted was for them to have a happy childhood and grow up to be happy people.  I wanted their lives to be the opposite of mine both as children and adults.  I know that I wasn’t always the mother I wanted to be, and I’m still not.  But they had at least one thing that I never did…I loved and will always love all of my children with all my heart.  People say about their children, “I’d die for them.”  I did more than that.  I lived for them when dying would have been a lot easier.  I’m getting off on a tangent here, but I suppose I needed to say that.  Back on topic…I went from physically abusive relationships to an emotionally abusive one.  I’ve never had anyone love me.  Everyone who claimed to love me, actually loved their image of what they wanted me to be.  I always put who I was or wanted to be in the background to be what I was “supposed” to be.  Even now I often don’t seem to live up to my children’s expectations of who they think I should be.

Fast forward to me at almost 50…I find myself in a relationship with someone who loves who I am, a relationship with no abuse at all.  This is a relationship where not only am I allowed to be myself, but respected, admired, and encouraged to be myself.  I grow and flourish in ways I never knew I could.

Can you see why it all seems so surreal?

I know I’ve said some things in here today that will make you smile and other things that will make you shudder.  That’s my life.  But today, now, I’m all smiles.  I have a life that I never even dreamed was possible.  I’ve lived way too many nightmares.  If this is a dream, please don’t wake me up.

Until next time…